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Four years ago I was diagnosed with HCV inactive
10-27-2012, 11:23 AM
Post: #1
Four years ago I was diagnosed with HCV inactive
Four years ago I was diagnosed with HCV inactive. More testing concluded I had auto immune hepatitis and have been on treatment for the last three yrs for that with prednisone and imuran. Today I received a phone call from my doctor's office that my C virus was now active. I am waiting for a specialist to call me back and let me know what this means for me. I am very nervous, I have had anxiety attacks within the last four months and I don't know if I can be treated for both diseases. Can you please let me know if this is possible and what outcome I might expect. Thank you for any insight you can give me to what I will be facing next.
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10-27-2012, 11:28 AM
Post: #2
RE: Four years ago I was diagnosed with HCV inactive
If you have both hepatitis C and auto immmune hep, you may be between a rock and a hard place. You said you had been told you had "inactive" hepatitis C earlier. I'm not sure what the doctor meant to tell you, as one either HAS hepatitis C -- is infected with acute hep C, or has hep C which has become chronic -- or one does not.

If you tested positive for hep C antibodies, but negative for RNA, it probably meant you had been infected but were able to clear the virus without treatment because your own immune system was able to clear the virus. Another possibility: if your viral load was checked and came back "undetectable," there was actually a small amount of virus -- too small an amount to be caught on the check and during steroid treatment, viral replication increased the # to detectable.

Ask your doctor, were you tested for HCV RNA, the first time around? If it was only a few years ago, the lab results should still be in your records. Copies could be gotten. It sounds like you may have had chronic hepatitis C all this time. But I'm not looking at all the lab results! Have you had a biopsy/ biopsies? Ask questions of your doctor. Ask until you feel you understand. You have a right to ask questions Until you have enough answers -- for the moment. Take notes. Or take along a friend/family member to take notes. Otherwise, you probably won't remember all you've been told.

Chinese Herbal Medicine for Hepatitis C and Cirrhosis of Liver
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